About Phoenix Society for Burn Survivors

The Phoenix Society for Burn Survivors is the only national organization helping burn survivors everywhere get back to living.

Several hospitals participate in Phoenix Society SOAR trainings

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Whew, what a busy past few weeks for the Phoenix Society’s SOAR (Survivors Offering Assistance in Recovery) program!

In May, Phoenix Society staff members and SOAR coordinators held peer support trainings at Arkansas Children’s Hospital in Little Rock, Arkansas, and Harborview Medical Center in Seattle, Washington.

The training covers such topics as how to work in a hospital setting, the role of the peer supporter, boundaries, do’s and don’ts, communication skills, and the process of psychosocial recovery for patients and families. The training is taught through lecture, discussion, case studies and role-playing.

At the annual American Burn Association meeting in late April, several hospitals participated in SOAR trainings, including Shands (University of Florida), Spectrum Health (Grand Rapids, MI), Foothills Family Medical Centre (Calgary – Alberta, Canada), Via Christi Health (Wichita, KS), Brigham And Women’s Hospital (Boston, MA), Santa Clara Valley Medical Center (Santa Clara, CA), and The Edward G. Hirschman Burn Center at Arrowhead Regional Medical Center (Colton, CA).

“It’s exciting because those involved in the training sessions are either adding to their existing SOAR programs or starting new programs in areas previously not served,” said Pam Peterson, Program Director of the Phoenix Society. “Becoming involved in SOAR broadens the community of support for burn survivors and their families”

Learn more about SOAR at www.phoenix-society.org/SOAR

Your donations help support the SOAR program!
Donate now at www.phoenix-society.org/donate

Join us! Register for the Phoenix Society’s 24th annual World Burn Congress

Registration is now open to the Phoenix Society’s 24th annual World Burn Congress!

Join us in beautiful Milwaukee, Wisconsin, September 12-15, for this year’s Phoenix Society’s World Burn Congress, an international conference that brings together more than 800 burn survivors, their families, care givers, burn care professionals and firefighters! 

Held at the Hyatt Regency-Milwaukee and Frontier Airlines Center, World Burn Congress is a forum in which we encourage and facilitate the sharing of stories, provide support and increase knowledge of burn recovery.

The UBelong program returns, and is designed to positively inspire and support children and teens, 7-17 years old.   Included are separate workshops and support groups for young adults, 18-25 years old and special sessions for parents.

The 2012 congress will feature keynote speaker Kyle Maynard, a special appearance by Phoenix Society board member and celebrity J.R. Martinez, and an assortment of other great speakers, presentations, workshops and more (Download Registration Brochure).

More on World Burn Congress   |   Register Now

Celebrating Mothers: Burn survivor and mom, Lisa Donovan

Lisa Donovan used to call herself the old woman who lived in a shoe.

Between working, going to school nights to finish her undergrad, all the while serving as a mother to six young children, the challenge is understood by most in the motherhood industry. Now armed with a Masters degree in Human Development and Family Support, and a laundry list of other accomplishments and responsibilities, Lisa has demonstrated an ability to thrive after a burn injury.

Even more remarkable? She isn’t even supposed to be alive.

As we celebrate Mother’s Day, we share the story of Lisa, a burn survivor, mother and healthcare professional at Shriners Hospitals for Children – Boston, that has used her burn injury and the Phoenix Society to help herself and others thrive again.

WHAT IS THE BACKGROUND OF YOUR BURN INJURY?

Lisa: I was injured in 1968 when I was 18 months old. My brother and I were in the backseat of the car, and there was a wiring defect. The car caught on fire while my parents were inside the house.

After taking us to the hospital, the prognosis wasn’t good. I coded at least five times, and they didn’t expect me to live.

The burns affected my face and hands. But with babies, the face is the biggest part of the body, and that was one of the toughest parts for my parents. My brother was 10 months older, and his injuries were not as severe.

THE LONG-TERM PROGNOSIS OFFERED BY THE DOCTORS WAS UNSETTLING, TO SAY THE LEAST?

A picture of Lisa as a child

Lisa: The doctors were insistent with my parents that I wasn’t going to make it. And even if I did, they told my parents that because my brain had lost so much oxygen, I was going to be mentally impaired and would never be able to walk and talk – and they suggested that I should be institutionalized if I survived.

Due to the severity of the burns on my hands, the doctors had also suggested the amputation of both hands because they wouldn’t be useful, but my father would not let them do this.

THERE WAS A SWEET IRONY TO THAT DIRE OUTLOOK, THOUGH …

Lisa: Yes! I regained the use of both of my hands, and I was walking and talking in plenty of time for school. As for being brain damaged? I graduated college with the highest honors, summa cum laude!

HOW DID YOUR INJURIES AFFECT YOUR CHILDHOOD?

Lisa:  I would not even realize my scars were there because my parents were really great at treating us no different from any other kid. There was no school re-entry program, there was nothing like that.

At one point, there was a new kid in our first-grade class, and the principal called my mom and said he was having a hard time because I was scaring him; he asked my mom if she could keep me home. My mom responded, ‘If he’s having a hard time, maybe he should stay home for a few days.’

Another time, I was coloring at my desk, and a couple kids came up and said ‘Lisa, take off your mask, it isn’t Halloween.’ And I thought, ‘He’s right, it’s not Halloween, I don’t know what he’s talking about.’ So I smiled but it didn’t occur to me that it was about my scars. A couple of years later, once it occurred to me, it made me upset.

I’ve always been very outgoing, which probably helped.

HOW HAVE YOU USED YOUR EXPERIENCE WHEN RAISING YOUR CHILDREN?

Being a mother means everything to me. My kids are my world. I love them all, unconditionally, and being a survivor what I try to get across is to treat other people how you want to be treated. If there’s someone in your class that’s different, be understanding, especially if it’s something they can’t help. My burn injury is something I had no control over, so to tease someone over something they didn’t sign up for only adds insult to injury. I try to stress to my kids to be accepting of everybody: physical disabilities, race, gender, everything.

I think I have ‘street cred’, and it helps me with my work at Shriners Hospital for Children, too. You can talk to a child about having a donor site, but what if you’ve never had one? Once they know I’ve had a donor site, I think that helps.

WHEN YOUR 16 YEAR OLD SON WAS BORN, IT WAS LIFE CHANGING ON MANY LEVELS. CAN YOU EXPLAIN?

Until my son was born, it had never occurred to me to work at Shriners, even though I had been a patient. He was born with a very rare skin blistering disorder, missing a big chunk of skin on his abdomen, and he was in the NICU and they thought he was going to die. The whole time he was in the hospital, the dermatologists were bringing me different diagnosis; and as a parent your mind just races. I thought, ‘How is my child going to live with this?’

With my background, I didn’t want him to be teased. All I wanted to do was to talk to someone who had a child with this condition, so I knew he was going to be OK; as a parent I wanted to know if he was going to have friends, and be married and be fine.

I was finishing my undergrad at Northeastern University, and I had an epiphany: what could I do that would be meaningful, with my experience and with my degree, and help other people? And that’s when I thought of Shriners, and being a person for parents who have a child with an injury, and answer those same questions that I had.

So I investigated and I looked into it, and I got a position at Shriners Hospital for Children in Boston in the child life department. I completed my masters in Human Development and Family Support and became a Certified Child Life specialist.

Because of my parents serving as role models, treating us the same, I tried to normalize everything for him. I hope I had some influence on how well he’s turned out.

HOW DO PATIENTS OR FAMILIES REACT TO YOUR OWN PERSONAL EXPERIENCE?

Lisa Donovan (back row, on the left) with members of the healthcare team at Shriners Hospitals for Children – Boston

Just yesterday, I went into give some parents information and the father was said, “I see you’re a burn survivor” — I liked he used that word and not the ‘v-word.’

I was shocked that he noticed because I don’t think of my injury at all. And he was very impressed that I was working at the hospital and commented that must be wonderful for the kids and families.

YOU’RE ALSO A PHOENIX SOCIETY SOAR COORDINATOR! HOW WERE YOU INTRODUCED TO THE PHOENIX SOCIETY’S SOAR PROGRAM?

I never heard of the Phoenix Society until 2000 when I was looking for resources for one of my patients, I found it to be a fantastic resource and believe that it would have been a fantastic resource for my family had we known about it.

I was sent to the Phoenix Society’s World Burn Congress in 2004 to get some information on the SOAR program. I started learning more about the program, met a lot of great people, and learned a tremendous amount. I also knew the value in it, so I went about creating the program here.

DECADES AFTER YOUR OWN ACCIDENT, YOUR MOM IS NOW A SOAR PEER SUPPORTER. HOW HAS SHE BENEFITED FROM THE PHOENIX SOCIETY PROGRAMS?

I was able to get my mother to be one of my SOAR peer supporters, and she was also able to attend last year’s World Burn Congress (in Cincinnati) and she never had that support available, and she loved it!

Even when you talk to her and ask about the accident, it’s still very raw, because she didn’t really have a safe place to talk about it. It has helped to her healing. It’s a catalyst to her healing and I was happy she was able to experience it.

Your donation supports Phoenix Society programs that provide burn survivors with the tools and resources they need to thrive again

MANY PEOPLE MIGHT ASK ‘HOW DO YOU DO IT?’ DO YOU HAVE ADVICE FOR THOSE TRYING TO MEET THEIR OWN CHALLENGES?

I think first of all you want to be a positive role model. Giving back to your community, like Phoenix Society pays back to the burn community, is important. Being honest with your kids, and letting them know that life isn’t always easy and there’s going to be challenges, and you just have to face them and devise a plan. My big thing is: What are your goals? If you have goals, you’re going to go somewhere. If you don’t, you’re just treading water.

National Nurses Week: We’d like to say ‘Thank You!’

“Nurses dispense comfort, compassion, and caring without even a prescription.” – Val Saintsbury. 

It’s National Nurses Week, and we want to recognize the hard work, dedication and compassion demonstrated by nurses.

Between those on our staff and in the burn community, the Phoenix Society for Burn Survivor’s mission and individuals affected by a burn injury are impacted each day by nurses!

To those in the nursing profession, we say thank you!

UBelong! Young burn survivors share message of hope!

Celebrate this fantastic video produced by the teen group at the Phoenix Society’s 2011 World Burn Congress UBelong program.  They worked as a team to identify the subject matter of the video, record interviews and ultimately produced the finished product with the help of our expert volunteers!

The Phoenix Society’s UBelong programs take place during our annual World Burn Congress, and include a Parent Workshop and Support Group, Young Adult Workshops and Support Groups (ages 18-25), and Youth Groups broken down by age (ages 7-17), and are offered by 25-30 highly skilled facilitators from the burn care field. There is also child care for ages 6 & under.

We enjoy purposeful activities, team building, games, motivational speakers, social skills training, self-esteem activities, and more!

The Phoenix Society will again be offering UBelong at the 2012 World Burn Congress, September 12-15 in Milwaukee, Wisconsin, and invites your family to attend the program. Registration is required. Attendee scholarship applications are also available.

If you have questions, please contact Amy Clark, Program Director at 800-888-2876 or aclark@phoenix-society.org for more information.

Make room in your family calendar for this meaningful and memorable event!

Phoenix Society, IAFF Burn Foundation, and National Fallen Firefighters Foundation introduce peer support for firefighters

[Watch Full Video]

The IAFF Burn Foundation, the National Fallen Firefighters Foundation and the University of Kentucky College of Social Work partnered with the Phoenix Society for Burn Survivors to develop a firefighter peer support component of their national Survivors Offering Assistance in Recovery (SOAR) program. This national program offers burn injured firefighters and their families one-on-one support from a trained firefighter/family member peer supporter.

“Most people after they are burned stay away from fire or whatever it is that caused their injury and here I was wanting and praying to walk back into doing the very thing that had changed my life… My wife and I had the pleasure through the (pilot) SOAR program to meet other burned firefighters and their spouses… They shared their stories of success and setbacks and how they overcame them… At times it seemed that the other firefighters and their spouses were telling our story because the experiences were so similar… I gained confidence that if these families could survive this, then so could we.”

Jason Keuhler
firefighter in Alexandria, VA.

Information obtained from focus groups with burn injured firefighters and their families was utilized to develop this program. The new content found within these unique SOAR trainings and its materials includes descriptions of the burn-injured firefighter’s experience, their family member’s experiences and the fire service culture. Topics such as “Dealing with the Media” were added, and other areas, including “Recognizing and Managing Compassion Fatigue” were expanded.

We are excited about our continued work on this project. More information about the program will be shared at the 2012 American Burn Association (ABA) Annual Meeting, including at the Phoenix Society for Burn Survivors booth in the ABA Exhibit Hall.

For more information, visit the Phoenix Society’s SOAR Firefighter page, or send an e-mail to firefightersupport@phoenix-society.org 

BBC interviews Phoenix Society on living with a facial difference

Barbara Quayle runs the Image Enhancement Program at the Phoenix Society's World Burn Congress, and is involved in numerous other programs!

In light of the Richard Lee Norris story, who this month was the recipient of the most extensive full face transplant, the international news organization BBC reached out to the Phoenix Society for Burn Survivors to learn about the challenges and resources available when living with a facial difference

The Phoenix Society was represented by burn survivor and consultant Barbara Quayle, who has helped develop social skills and image enhancement programs for the organization. The latest is an online learning course for survivors to be launched this Spring.

Appearing on the BBC podcast, World Have Your Say, with two others living with a facial difference, Barbara discussed her own challenges and those faced by others. Citing the Phoenix Society, she also talked about some of the steps to overcoming these issues.

“One of the key things, certainly for me, was an organization here in the united states, the Phoenix Society for Burn Survivors that offers support and programs to help people navigate that journey back to life again, and learning how to deal with the skills of staring, questions, for kids’ teasing, and starting conversations, and going out in the grocery store and restaurants, and all the things they did before.”

Listen to the complete interview ~
Find resources at phoenix-society.org
Help burn survivors get back to living: Donate Now 

Burn survivor, board member Sarah Bazey crowned Mrs. Minnesota International

Sarah Bazey was a speaker at the Phoenix Society's 2011 World Burn Congress

Sarah Bazey used her final answer to deliver the mission of the Phoenix Society for Burn Survivors. Moments later, she was crowned Mrs. Minnesota International.

According to the Mrs. Minnesota International web site, the ‘pageant showcases the many accomplishments of Minnesota’s married women.’

In an excellent display of advocacy, the Phoenix Society board member and burn survivor used her platform to champion the efforts of the organization, while also sharing her own story.

Burned in a helicopter crash in 1994, Sarah is now a volunteer with the Phoenix Society’s SOAR (Survivors Offering Assistance in Recovery) program at Regions Hospital in Minneapolis, Minnesota. The Harvard Business School graduate is also the President and CEO of a national award winning constructions materials company.

Phoenix Society board member Sarah Bazey was crowned Mrs. Minnesota 2012! (photo credit: paulapreston.com)

“It was a complete honor to promote and educate people from around Minnesota about the Phoenix Society,” said Sarah, who was also a keynote speaker at the Phoenix Society’s World Burn Congress in 2011.

In the pageant’s final round, Sarah was asked what she recommended for a family to help a loved one that was severely burned, and how they might return to a normal life.

“You can imagine, it was pretty easy to share a message about the Phoenix Society and the programs that are offered,” she said.

Sarah will compete for the title of Mrs. International 2012 in Chicago on July 20th-21st, an event that will feature titleholders from throughout the United States and around the world.

Learn more about the Phoenix Society for Burn Survivors   |   Donate Now!

Young violinists raise money for the Phoenix Society

After looking at photos of burn survivors in a Phoenix Society article, four-year old Dacha said to his dad, “I want my violin concert to raise money for those kids.”

Dacha (now 9) and his brother Sava (7) have now raised almost $1,000 with their annual violin recital, ensuring children that survive a burn injury have tools like the Phoenix Society’s ‘The Journey Back’ school Re-entry program, which eases the transition back to school.

Watch how the two brothers have used their talents to help support our organization and become inspired!

Donate today at: phoenix-society.org/donate

Burn Survivor Portrait: Melisa Schoeppler

After the remarkable film Saving Face won an Oscar for “Best Documentary” last weekend, we decided to bring you a story from a burn survivor in our community. Melisa’s own story of overcoming abuse to find
happiness is a true inspiration!

The following is a reprint from our
Spring 2008 issue of Burn Support News

Victim. Survivor. In the burn community, we know that these are more than just words. They are ways of life.

Victim describes someone who has given up or one who has no control over his or her situation and is in a vulnerable place. Survivor describes someone who has not just lived through a devastating injury, but has reclaimed his or her life and is thriving despite the injury.

Melisa Schoeppler and Erin Mounsey

By her own admission, Melisa Schoeppler was a victim. After sustaining third- and fourth-degree burns to 95 percent of her body, she wanted to die. She wanted to lash out at the world. She wanted others to suffer like she had suffered. She never thought anyone would love her again. She thought about taking her own life.

Today, Melisa embodies the word survivor. Her harrowing journey of anguish and epiphany is a true inspiration.

When Melisa was 12 years old, her mother was involved in an accident and was no longer able to care for her. Melisa bounced from home to home and eventually ended up in a group home. It was while living in the group home that Melisa met her future husband. She was 14 years old; he was 35. When Melisa turned 18, the two were married, despite the fact that even on the eve of their wedding Melisa already knew things weren’t right. “I didn’t have the strength to walk away,” she explained, “so I walked down the aisle.”

“Because he was older, I put my trust in him,” said Melisa. “I trusted him to tell me what was right and wrong.” But her new husband was mentally and emotionally abusive. He controlled her every move and stifled her independence. He isolated her from family and friends. “I was always protecting him and trying to make sure he was happy and satisfied,” she said. “I came in second, third, fourth, or even fifth best.”

When Melisa confronted him, he promised to change. But he didn’t. After 5 years of marriage. Melisa had had enough. She told him she wanted a divorce. Initially, she thought he handled the news well. He had never physically harmed her, so she didn’t fear for her safety.

A few nights later, he called her to the garage where he was working on a car. Melisa stood outside answering his questions. As she looked for a place to extinguish the cigarette she was smoking, Melisa’s husband approached and threw a gallon of gasoline at her. The gas hit her in the chest and splashed everywhere. It was on her face, her arms, and her legs. As if in slow motion, Melisa recalled, she looked at her left hand and saw the lit cigarette. “An alarm went off in me,” she said, “but in that instant I was on fire.” Melisa knew she needed help. “I screamed his name and said ‘I’m dying,’” said Melisa. “He looked at me and said, ‘I know.’”

She ran into the front yard screaming. “I cannot begin to describe the pain,” she said. “It was all encompassing, excruciating.” She said she looked at her arms and they looked like burning twigs.

A neighbor called 9-1-1. In the ambulance, Melisa pleaded with the paramedics to let her die. The doctors didn’t know if she would live. They discussed taking her off life support, but Melisa’s mother wouldn’t allow it—her daughter was only 23. Melisa woke up in the hospital with her mother and husband at her bedside. Her husband was crying and saying how sorry he was. “He said, ‘You are going to get better, and we are going to go for long walks and hold hands,’” recalled Melisa.

“I didn’t think I could blame him,” she said. “I simply didn’t have the strength. I didn’t even care whether I lived or died.” She was in pain, alone, and scared. She added, “I barely had enough energy to take one breath after another.”

Any serious burn is difficult to deal with. Being burned as the result of abuse presents unthinkable obstacles. Melisa said, “It was difficult to talk about for a long time. I almost felt responsible for the burn.” Melisa suffered extensive physical damage. She was burned on every part of her body except her scalp and feet, which were used as donor sites for multiple skin grafts. She lost parts of her hands and fingers. She lost most of her pores and fat cells, so she can no longer sweat or gain weight on most areas of her body. To this day, Melisa still has a tracheotomy.

Melisa was airlifted to the burn unit in Edmonton, Alberta, Canada, where she spent the next 10 months. She spent another 7 months in a rehabilitation hospital, 5 hours away from her family and friends in her hometown of Saskatoon, Saskatchewan.

As Melisa’s condition improved, her husband’s visits became infrequent. He kept her family and friends from visiting. “I had fear and hatred,” she said. “I was becoming more and more angry at life and at the world. I hated other people because they had not been burned.”

While in the hospital, Melisa was visited by other burn survivors. “At the time, I resented their visits,” she said. “I didn’t want to look like them, talk like them, or walk like them. I just wanted them to go away.” Melissa explained that while she was too “angry and emotionally wounded” at the time to appreciate their efforts, the impact they had on her was “sneaky the way it emerged over time,” helping her to “grow and heal nonetheless.” Years later, she added, she was “blessed to be able to meet them again, and to thank them.”

Close to the end of her rehab stay, Melisa was given a weekend pass. Her husband had rented an apartment on the 28th floor of a nearby complex. In the elevator, Melisa couldn’t reach the buttons from her wheelchair. She said it gave her a horrible feeling of entrapment and foreboding.

“My self-esteem had plummeted,” said Melisa. “I began to think of myself as a hideous half-human monster that belonged in horror films. I felt like I wasn’t worth anything to anybody anymore, least of all myself.”

She was also facing unbelievable physical challenges. Despite having endured more than 100 surgeries, she still wasn’t able to close her mouth or turn her head from side to side. She still had painful open wounds that required daily dressing changes.

Looking out over the balcony from the 28th floor, Melisa said she knew that if things stayed the way they were, she was going to end up on the ground. She said she feared that either she was going to jump or he was going to push her. That was the deep, dark place to which Melisa was confined.

But Melisa didn’t give up. She summoned all her courage and found the strength to begin changing her life. “I slowly realized that God still loved me,” said Melisa. “God didn’t care about my scars. He saw me from the inside, and if God could still love me, maybe I could love me too.”

Melisa left her husband, moved back to her hometown, and began to reconnect with family and friends.

In May 2005, nearly 5 years after her injury, Melisa made the decision to attend the Canadian Burn Survivor Conference in Winnipeg, Manitoba. At the conference, Melisa attended the B.E.S.T. program, presented by Barbara Kammerer-Quayle, a burn survivor and image enhancement and behavioral skills specialist. The program, offered through the Phoenix Society for Burn Survivors, teaches practical tools to empower burn survivors to feel confident in any situation. Melisa said, “I was so inspired by Barbara and her program. I started to realize that it is my choice how I respond to people and how I let myself be treated. Hearing Barbara talk gave me incredible strength and encouragement.”

Melisa met many burn survivors at that conference. “If they were happy, I could try too. Meeting other survivors who had come through their burns with a positive attitude gave me strength and motivated me to do the same,” she said. “Yes, terrible things happen, but I started to see myself as re-born with a new life and new opportunities.”

Upon returning home, Melisa met and thanked the firefighters who responded to her 911 call. Shortly after, she began volunteering with the Saskatchewan Professional Fire Fighters Association (SPFFA) Burn Fund. She started visiting schools with firefighters to talk about fire prevention and fire safety. She said, “At first I was so nervous. I had had some bad reactions from children before. They had been scared of me. But I started to realize that people tend to be afraid of what they don’t understand. I wanted to educate the kids in fire safety and give them a better ability to accept people with physical differences.”

Melisa longed to be a role model to these children, but thought, “How can I be a powerful role model, if I still see myself as a victim?” It was at that point that Melisa said she stopped thinking of herself as a victim. “I learned that happiness is a choice. Being a victim is a choice,” said Melisa. “As long as I saw myself as a victim, I was giving my power away.”

Melisa Schoeppler (middle) and Erin Mounsey (far left) regularly attend the Phoenix Society's annual World Burn Congress

Today, Melisa has learned to use humor in difficult situations. She said, “If I can get people to laugh, it breaks the ice. It can still be hard when people stare, but it has gotten easier over time and I’ve learned that if I smile at them they will usually smile back.”

Through her involvement with the SPFFA, Melisa said, she discovered that she had the potential to turn something horrible into something good. She added, “I want to inspire other people and make a difference in someone else’s life.”

Today, Melisa is doing just that. She regularly speaks in schools and she volunteers at the Red Cross, as well as for a program that provides transportation to seniors and people with disabilities. She is also writing a book about her journey. In the future, she wants to enroll in college and study psychology. She hopes to work with women who have been abused.

Prior to her injury, Melisa said her self-worth came from her physical appearance and possessions. “Even after my burn injury I tried desperately to find happiness on a store shelf,” she said, “but it just wasn’t for sale. I know now that joy is not only a choice, but it’s also an emotional tool that each of us may tap into at will, regardless of external conditions.”

Although Melisa was healing emotionally, she came to the conclusion that she would never have another intimate relationship. She explains, “I had come to believe and accept the fact that nobody would ever love me, so I learned to be happy alone.” However, fate had a different path in mind for Melisa.

At the Phoenix Society’s 2005 World Burn Congress in Baltimore, Maryland, Melisa met a fellow burn survivor named Erin Mounsey. “When I first met Erin,” she recalled, “I literally thought, ‘Wow, this guy is really nice! I hope he has a great life.’”

Melisa and Erin spent a lot of time together during that conference, but “Erin didn’t force himself on me,” Melisa explained. “He said, ‘I really enjoy spending time with you, but if you need some space just let me know.’ He gave me permission to have barriers and the freedom to choose, and that was exactly what I needed.”

Your donation supports Phoenix Society programs that provide burn survivors with the tools and resources they need to thrive again

Meeting Melisa also had a big impact on Erin.

“Meeting Melisa was such an amazing surprise, he recalled. “Her vibrancy and zest for life was so reassuring and refreshing.”

Melisa and Erin kept in touch after the conference.

They e-mailed each other and had many late night phone calls. Their relationship continued to develop and they became committed to each other. Together, they made the decision that Melisa would move to Colorado.

Melisa said, “Erin is such an amazing blessing in my life. He encourages me to learn and grow and experience life. He supports me in my choices because he wants me to be independent and try new things. It’s truly wonderful to be in love with my best friend.”

Today, 2-1/2 years later, the couple is engaged.

“We both had such hardships and tragedy with our past love experiences,” said Erin. “I had absolutely no concept that the greatest love and the most complete comfort of my life would be found on the other side of this burn experience.”

However, the journey for Melisa did not happen overnight. Through much self-reflection, Melisa learned, “Success and happiness are not about the kind of car I drive or what I look like. I know now that beauty and happiness come from inside.”

Her advice to other burn survivors is, “Take things one day at a time. Don’t look at the big picture. Celebrate the small successes—I was so happy the day I was finally able to button my own jeans.”

Through it all Melisa has learned that life can be short and unpredictable. She said, “None of it should be taken for granted. Today, I’m happier that I ever was before the burn.”

Melisa Schoeppler is clearly a woman who not only faced the flames, but survived the flames.

Update: Melisa Schoeppler and Erin Mounsey are now married and live
in Colorado. Both are Phoenix Society SOAR trained, regularly
attend World Burn Congress, and work as advocates on behalf of
the Phoenix Society and burn community.

LEARN MORE ABOUT …
- SOAR
- World Burn Congress